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The Pulmonary Hypertension Association presents ”PH Insights,” a podcast amplifying patient voices, sharing meaningful conversations with health care professionals and insights into pulmonary hypertension. Join PHA, people with PH and PH experts, as they share important information to support the PH community.
Episodes
5 hours ago
What You Should Know About Transplantation
5 hours ago
5 hours ago
Guests: Jordan Whitson, MD, transplant pulmonologist, Duke Pulmonary and Specialty Services Clinic and Diane Ramirez, PHA Board of Trustees member and heart and lung transplant recipient
Transplantation may be a treatment option reserved for patients who are not improving on medical therapies. While transplantation can prolong survival, improve quality of life and offer a potential cure for pulmonary hypertension, it also carries risk of significant complications, and many factors need to be considered before going forward. In this episode of PH Insights, Whitson discusses what a transplant recipient can expect before and after surgery. Heart and lung transplant recipient, Diane Ramirez joins him to share her experience with the transplant process and how she’s feeling a year post transplantation.
Wednesday Oct 09, 2024
Navigating Open Enrollment Season: An Overview of Insurance Options and Medicare Changes
Wednesday Oct 09, 2024
Wednesday Oct 09, 2024
PHA’s Advocacy and Treatment Access program manager, Jaeger Spratt, guest-hosts this episode for Open Enrollment Season. They invited Kim Everett, a pulmonary arterial hypertension and lupus patient, to talk about her experiences with insurance over the years and share how current Medicare changes have improved her prescription experience. Guest Amy Niles, chief mission officer at the PAN Foundation, tells listeners everything you need to know about Medicare reforms for 2025. Jaeger and Amy also highlight resources like PHA’s Insurance Guide, webinars about Medicare on PHA Classroom, and other places to find additional resources like Medicare.gov (1-800-633-4227, TTY users: 1-877-486-2048), local State Health Insurance Assistance Programs (the SHIP program) for receive free, personalized health insurance counseling, and Patient Advocate Foundation’s case management services (800-532-5274)
Wednesday Sep 25, 2024
A Closer Look at Pulmonary Hypertension and Interstitial Lung Disease, Part 2
Wednesday Sep 25, 2024
Wednesday Sep 25, 2024
Guests: Jeff Spiwak, a patient with pulmonary hypertension and interstitial lung disease; and Ahmad Abu Homoud, MD.
In this episode of PH Insights, Spiwak, a pulmonary hypertension and interstitial lung disease patient, joins Hamoud to discuss the impact of PH-ILD on daily life and the importance of exercise or physical activity to manage the condition. Homoud and Spiwak share the importance of support and maintaining a positive attitude while living with a chronic illness. The episode concludes with advice for seeking early medical help and a message of hope.
Wednesday Sep 11, 2024
A Closer Look at Pulmonary Hypertension and Interstitial Lung Disease, Part 1
Wednesday Sep 11, 2024
Wednesday Sep 11, 2024
Guest: Ahmad Abu Homoud, MD, medical director, Pulmonary Hypertension Center,
Jersey Shore University Medical Center; and associate program director, Department of Pulmonary and Critical Care, Shore Pulmonary Physician Associates.
In this episode of PH Insights, Homoud discusses the connection between pulmonary hypertension and interstitial lung disease. ILD is a group of disorders that cause scarring (fibrosis) or inflammation of lung tissue, leading to stiffened lungs and difficulty breathing. People with ILD may develop pulmonary hypertension due to a stiff left side of the heart or sleep apnea. Homoud explains the development of PH in ILD, a rare condition that affects about 30% of patients. He also discusses the diagnostic process for both conditions and available treatment options, including medications, oxygen therapy and pulmonary rehabilitation. He also emphasizes the importance of early detection and encourages patients to work closely with their medical team.
Thursday Aug 15, 2024
Filling in the Blanks: Understanding Pulmonary Hypertension, Part 2
Thursday Aug 15, 2024
Thursday Aug 15, 2024
Guests: Jenny Yang, MD, and Monica Penaranda, PHA Board of Trustees member and PH patient.
In this episode, we hear from Monica Penaranda, who has been living with pulmonary arterial hypertension for 27 years. Diagnosed while pregnant, Penaranda shares her diagnosis journey and discusses the importance of perseverance, proper medical care and finding joy while living with PH. Jenny Yang explains how pregnancy can often reveal undiagnosed PAH, highlighting the critical importance of early detection and specialized care. Tune in to hear Penaranda’s inspiring journey and how advancements in PAH treatment have supported her along the way.
Monday Aug 05, 2024
Filling in the Blanks: Understanding Pulmonary Hypertension, Part 1
Monday Aug 05, 2024
Monday Aug 05, 2024
Guest: Jenny Yang, MD; assistant professor of medicine, University of California San Diego
Pulmonary hypertension is a complex and underdiagnosed condition that affects the blood vessels in the lungs. Blood vessels can become stiff, damaged or narrow, causing the right side of the heart to work harder to pump blood through. In this inaugural episode of PH Insights, Jenny Yang provides a comprehensive overview of PH, its classifications and common misconceptions associated with the condition. Listen now for valuable insights into PH and new advancements in research and treatment that offer hope to people with PH.
Pulmonary Hypertension Association
Our mission is to extend and improve the lives of those affected by PH.
Our vision is a world without PH, empowered by hope.
We are the largest and oldest pulmonary hypertension association in the world, and we are changing the history of an illness.
We started from simple beginnings in 1991 when four women met around a kitchen table in Florida. Since then, the Pulmonary Hypertension Association has evolved into an international community of more than 16,000 people with PH, caregivers, family members and health care professionals.
PHA is a 501(c)(3) nonprofit organization that relies on donations to fund its many programs, including a network of 200-plus patient and caregiver support groups, lifesaving early diagnosis awareness and education programs, specialty care resources, and research to prevent and cure PH.
We work every day to end isolation, provide education, involve our constituents in everything we do, and find a cure for pulmonary hypertension.